Maman Poulet | Clucking away crookedly through media, politics and life

The Smokescreen of Disability and #Crref

November 6th, 2012 · Disability, Equality, Uncategorized

The referendum on Children which will take place this Saturday is about the state’s responsibility to children who are neglected or abused and at risk in their families – where their parents are not able to protect them or may be abusing them. It is about listening to children in those situations and acting where they need to be protected. It is about listening to children where decisions are being taken on their future, where families breakdown or disappear completely and about seeing them as persons in their own right.

It is not about disability. It is not about Parents with a Disability. It is not about children with disabilities and their disability.

Some of those who are insistent on pointing out disability issues with regards to this referendum don’t actually favour rights for people with disabilities or this state ratifying the UN Convention on Rights for people with Disabilities. They don’t want people with disabilities to make their own decisions or be supported to do so, have excellent services, gain independence or have families and relationships of their own. But that’s not the point of the referendum this Saturday. It’s about a very small group of children in exceptional situations who need the state to protect them. Heretofore the state has not always done this and our terribly outdated Constitution needs to be changed to ensure the state can act in the very small number of situations where children need protecting and need to be heard.

The referendum if passed will also challenge courts to think about children in a different way with regards to many issues. The amendment will allow for much new law to be made to help all children (including children with disabilities) define their rights.

I would like a new constitution please where children and adults with Disabilities were protected. I would love to think that the forthcoming Constitutional Convention would address this and guarantee equality but it won’t. I despair at the fact that this government and all political parties either ignore people with disabilities or patronise us and use us as political fodder and amongst the first to cut.

But I won’t be confused this Saturday when voting and think that because my life is less valued or the lives of other people with disabilities are less valued that I will take it out on children who are regularly neglected or at risk or not listened to in child protection matters or the general case where children are not seen as individuals. I want those children to be heard. They deserve it. I want the state to have to support those children and those families and if it is not working and never going to work, in the exceptional cases, then the state needs to act and be held accountable to act. This is what this referendum is about.

It is up to us as citizens to demand action on all the issues which this referendum and the proposed amendment is not about – not about poverty, not about special needs assistants not about education or denying all children a right to an education, not about interfering in decisions parents make on health, not about replacing parents, not about bullying, and does not stop parents from telling their children what is right and wrong.

We really need to be clear what the referendum is about and not use it as a chance to beat up the government over their oppression of many childhoods while paying bondholders. Too many children have not been heard, too many children have been abused and too many children have died because the state did not or could not act. Children (including those with disabilities) will be seen as individuals if this referendum is passed.

Finally I am upset to have to refute the misinformation which is in danger of creating an automatic assumption that having a disability makes one a bad parent which is another emerging issue from those who oppose this referendum. It is horrendous that they are making people more vulnerable and hidden by scaremongering in this manner. We should be supporting all parents with disabilities to be appropriately supported and valued in having families and being parents – if they need that support.

The Children’s Rights Alliance have prepared a note on the referendum and disability. It is worth studying if you are confused or worried about issues concerning parents with disabilities or children with disabilities.

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Freedom Driver

November 1st, 2012 · Disability

I came across this short film recently featuring Dara Gallagher, a man I have yet to meet but know online and as a commenter on this blog. Dara is a great story teller and resident of Temple Bar and exponent of the importance of independent living.

The film has was highly commended in the Radharc Awards recently and also a finalist in the ICCL Human rights Film awards. It was directed by Fran Cassidy and Director of Photography was Peter O’Doherty.

Freedom Driver (short) from Francis Cassidy on Vimeo.

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Draft Disability Residential Standards published

October 26th, 2012 · Disability, Equality, Social Policy

The Health Information and Quality Authority (HIQA)  have begun a period of consultation on draft standards for residential services for children and adults with disabilities. This is the second time there has been consultation on standards in this area with the previous draft published in 2009 without implementation.

HIQA say that the standards set out a vision as to what people can expect from good quality residential services. There are 31 seperate standards proposed for both children’s and adult services and each standard has examples of features that service providers (public, private and voluntary) will be expected to demonstrate not only in inspections but also in terms of service provision agreements and complaints by those living in services, families and advocates.

There is no confirmation of a date when the standards will be implemented or about the budget required for inspections and also service delivery which will meet the standards.

The consultation is open to all interested parties and full information is available on the HIQA website in many formats. (A short video from HIQA is included below)

Responses are invited online and in other formats – hopefully current and former service users and their connections will also be able to contribute. The closing date for responses is November 21.

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Changes to RTE News and Current Affairs

October 25th, 2012 · MSM, Social Media

RTE’s new managing director of News and Current Affairs Kevin Bakhurst is settling in and yesterday announced changes to the station’s output that will take place early next year.

Claire Byrne and George Lee join Prime Time, RTE 1 will get a new morning news programme from 9 until 11 am and The Week in Politics will be broadcast earlier on a Sunday and repeated later that night. (Sean O’Rourke will be happier given his frequent jibing at the late hour of transmission for the programme, also they are less likely to be caught by the ‘hung by pre-record’ that affected the show last Sunday after Enda’s chat with Angela Merkel. Now if Kevin can sort the programme’s chronic dose of RTE Testicles I would be a very happy viewer. )

The role of RTE News Now which is now available to people on UPC (Channel 200) as well as online via apps and website and the area of digital news generally is one which Bakhurst has outlined as being pivotal to future developments.  He says that RTE have aspirations to providing a successful Irish Television news channel.  There’s talk of using smartphones and wifi to deliver news and give faster news gathering. This would mean that we might actually get to see news as it happens like the IMF arriving into Ireland and political heaves rather than have to suffer un-interruptable Fair City.  (Remember November 2010?)

Look forward to more discussion of the developments on this side of news output and to see increased inclusion of voices outside of Dublin in news and current affairs in addition to the generally good job done in Six One.  Also it would be an excellent idea for all the editorial guidelines which have been introduced and revised of late to be published and available to all to see.

The new season of Prime Time already shows a bit more oomph and diversity in the items covered (but less of the sofa and Quinn PR’s please?) however we have still to see what the plans for investigative journalism and reporting will be after the cancelling of Prime Time Investigates.

Surely though it cannot be long now till they really get sense in Montrose and bring back Questions and Answers? Pretty Please? (The begging worked with Saturday View‘s metamorphosis into Saturday with Claire Byrne on RTE Radio 1).

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‘Branching Out’ – a play exploring sexuality and relationships

October 25th, 2012 · Disability, Equality

Tickets are now on sale for ’Branching Out‘ - an original play by the Connect People Network’s Inside Out group. This play explores sexuality and relationships within the lives of people with extra support needs. The play takes place on 4 November from 4pm – 6pm in Smock Alley in Dublin.  After the interval there will be a discussion and interview with the actors led by actor and disability activist Donal Toolan.

Tickets can be purchased

Connect People Network  ’aims to help everyone learn about ways that people with extra support needs can be supported to learn about relationships and sexuality. We also want to make sure that the people who do this supporting do so in the safest and best way possible.’

 The term ‘Extra Support Needs’ may be new to a lot of people – it was picked by the group to be used instead of ‘mentally impaired’ or ‘intellectual disability’.
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Guest Post: Rally for Recognition: Identity, NOT Disorder

October 15th, 2012 · Uncategorized

Guest post by Cat McIlroy, Trans* Education & Advocacy [TEA]

Trans* Education & Advocacy [TEA] has recently been established by a small but dedicated group of 6 volunteers as a grass roots community organising collective committed to supporting, engaging, empowering and advocating for the trans* community in Ireland. Through our diverse voices and identities we seek to address issues from a different perspective using inclusive activities, creative media and innovative training to educate and inform about trans* people and our experiences. Our goal is to advocate for trans* rights and help bring forward positive social change for trans* people. For more information, visit www.transgender.ie

Being gay used to be a mental illness… being trans* still is.

Although the lesbian, gay and bisexual communities have experienced significant progress in the Irish legal and social spheres in recent years, trans* people have been left behind. In 2012, legal gender recognition and relationship and family recognition for trans* people still do not exist. Trans* human rights and equality issues have not been adequately or appropriately addressed by successive Irish governments.

The government’s Gender Recognition Advisory Group (GRAG) report to Minister for Social Protection, Joan Burton, last June outlined recommendations for a scheme to allow transgender people to apply for legal recognition in the form of gender marker change on their birth certificates. The GRAG recommends that applicants must fulfil the medical criteria of Gender Identity Disorder (GID) diagnosis or present evidence of gender reassignment surgery. GID is classified as a mental illness, and the diagnostic criteria is prohibitively restrictive, specifically exempting intersex people as well as many trans* experiences.

On Saturday 20 October 2012, TEA will mark International Day of Action for Trans* Depathologisation with the Rally for Recognition in Dublin. The main goal is to provide a space for trans* people to be visible, voice their concerns about Irish legislative proposals, and actively engage in action that will energise and empower them to speak out about their right to be recognised without pathologisation or further delay by the Irish State.

International Day of Action for Trans* Depathologisation

The Rally for Recognition: Identity, NOT Disorder in Dublin is part of a global campaign. Every October since 2007, the Stop Trans Pathologization [STP-2012] Campaign has called an International Day of Action for Trans* Depathologisation, with demonstrations held in cities world-wide. Last October, activist groups in 70 cities throughout Asia, Europe, Latin America, North America and Oceania held protests, rallies and other actions. For the first time this year, Ireland will hold a public event.

The STP-2012 Campaign demands:

  1. Removal of ‘Gender Dysphoria’/’Gender Identity Disorder (GID)’ categories from the international diagnostic manuals.[1]
  2. The abolition of binary normalisation treatments on intersex people.
  3. Free access to hormonal treatments and surgery (without psychiatric monitoring).
  4. Public coverage of trans*-specific health care.
  5. The fight against transphobia: educational training, social inclusion and employment for trans* people, as well as the visibility and reporting of all types of social or institutional transphobia.

The campaign aims to raise awareness that trans* identities are still considered mental disorders and demands the depathologisation of trans* identities. For more information, visit: http://www.stp2012.info/old/en

Rally for Recognition: Identity, NOT Disorder

We hope that the Rally for Recognition: Identity, NOT Disorder will harness the positive community engagement and momentum garnered from the recent 4th European Transgender Council held in Dublin, co-hosted by Transgender Equality Network Ireland (TENI) and Transgender Europe (TGEU). The Rally will enable people to come together to specifically express their concerns with the GID diagnosis or surgery requirement in the government’s current proposals for Gender Recognition legislation.

As the ILGA-Europe Conference is taking place in Dublin (18-21 October), we hope that delegates, LGBTI activists, trans* people, allies and friends from across Ireland and Europe will join us outside the gates of the Irish Parliament to demand the introduction of inclusive and respectful Gender Recognition legislation that will not enshrine the pathologisation of trans* identities in Irish law. TEA has invited a number of people to speak at the Rally including representatives from BeLonG To, Gay Doctors Ireland (GDI), ILGA-Europe, LGBT Noise, TENI, Transgender Europe (TGEU), and Union of Students in Ireland (USI).

TEA will host a placard-making session on Wednesday 17 October in Exchange Dublin from 6.30-9pm for individuals who may wish to make signs for the Rally and all trans* people and allies are welcome to attend.

Rally for Recognition: Saturday 20 October 2012, Dáil Éireann, Kildare Street, 2.30pm

Identity, NOT Disorder… Be there to help and support your trans* friends to get that changed.


[1] The Diagnostic and Statistical Manual of Mental Disorders (DSM) of the American Psychiatric Association is due to be revised in 2013 and the International Statistical Classification of Diseases and Related Health Problems (ICD) of the World Health Organisation in due for revision in 2015.

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A Bad Week

September 28th, 2012 · Irish Politics

Labour party members received an email from Eamon Gilmore this afternoon.  Subject is ‘a bad week’, it appears to be an attempt to soothe concerned/upset members.  He’s been busy while away in New York. I doubt Róisín Shortall will be that impressed.

Dear ,

REGRET AT ROISIN’S RESIGNATION

* The resignation of Roisin Shortall has been a great disappointment to me and something I would prefer hadn’t happened..

* Roisin has been a valued colleague for many years and has made a huge contribution to the Labour Party recently in her role as Junior Minister in the Department of Health and previously as one of our most resolute and prolific spokespersons in Opposition, and as a member of the Public Accounts Committee.

* She is somebody for whom I have the highest regard and who had worked extremely hard in her portfolio in the Department of Health.

ALEX WHITE TO BE OUR NEW MINISTER FOR PRIMARY HEALTH CARE

* Yesterday I proposed Alex White as Minister of State at the Department of Health with responsibility for Primary Care and I’m looking forward to working with him in his new role in implementing the commitments in the Programme for Government on health service reforms.

* As he has shown in his role as Chairman of the Oireachtas Committee on Finance, Public Expenditure & Reform and previously as Labour Leader in the last Seanad, Alex is a politician of immense ability and intellect, and as a public representative, is Labour through and through.

* I have no doubt that he will prove to be an excellent addition to Labour’s ministerial ranks.

 

PRESSING AHEAD WITH OUR PRIMARY CARE COMMITMENTS

* Labour has long advocated a shift towards primary care services as the fairest way of advancing efficient health care.

* To fulfil that commitment, I worked very closely with Roisin in advancing the important reform of primary health care through the political system, particularly in recent weeks and months, as did my ministerial colleagues and staff in my office. And let’s be clear, working together we made significant progress:

  • As part of the reform towards universal primary care, with the removal of cost as a barrier, we are extending free GP care to categories under the Long Term Illness Scheme.
  • Legislation to provide for this phased extending of a publicly funded GP service without fees will be introduced in the Oireachtas in the coming weeks.
  • The Programme for Government committed to Primary Care Centres as a priority area. As part of that commitment, funding of €115 million has already been earmarked for primary care centres across the country. These primary care centres have the potential to meet 95% of people’s day-to-day health and social care needs.
  • These Primary Care Centres will effectively act as a one-stop shop that will provide the first point of contact for the majority of the population in the years ahead, along with taking the pressure of our acute hospitals.

* It is sad and disappointing that Roisin will not be there to see these measures through to their conclusion, given the great work she has already done in these areas.

* But Labour in Government is committed to implementing the commitment in the Programme for Government to fundamentally reform primary health care.

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For those who can, please stand

September 26th, 2012 · Disability, Equality, Irish Politics, Paralympics, Recession

It has been a busy month.

When the Paralympics began I like many other people with disabilities wondered what the impact would be on the attitudes of the general public, primarily whether messages of rights and equality and respect would outweigh expressions of pity and sympathy.

I didn’t know that during the Paralympics in Ireland we would see the single most important action by people with disabilities against a government decision whilst our Paralympians were putting in record performances in London.

The discussions about the decision to cut Personal Assistant hours, home help and home care packages continued over the month with more attention given to policy and place of people with disabilities in Irish society. (Opinion piece by Donal Toolan in the Irish Times and analysis by Deaglan De Bradun are still worth reading.)

This government have failed to equality and poverty proof the measures they have taken since coming into office. When I have called for discussion regarding equality and rights based measures I’ve been told by politicians and analysts alike that these things are not important.  Despite pointing out that there may be opportunities to save money and improve the quality of life of many people with disabilities by both listening to people with disabilities and their supporters and including them in the decisions, reform has remained off the government agenda.

Labour Party politicians in particular point to the protection of primary social welfare payments as an example of how they have protected the most vulnerable. What the demonstration and turn around has shown is the equal importance of services for many in maintaining a quality of life and inclusion in society.

Before that protest I watched Inside the Department where ministers and advisors and civil servants appeared to spend more time talking about how something would look rather than the substance of any policy area.  I am sure that there are serious discussions held on policy areas and indeed we saw discussions with the sectoral interests but they appeared to be going through the motions.

I didn’t see any passion or any values (beyond those of spin) during the programme.  Throughout this government I have seen championing of small moves and u-turns as huge victories by the Labour Party. However equality and rights have been replaced by the insipid mantra of  ‘fairness’ with no interest in examining what is fair and how you measure it.  When the cuts to HSE funded home supports were initially announced there was largely silence apart from Colm Keaveney and Aodhán Ó Ríordáin.

Politicians talk about how they know about ‘these people’ when asked about people who use Personal Assistants and home helps – largely however people are seen as clients or people who attend TD’s offices not as those who live full lives. The failure to introduce rights based legislation in 2005 is largely ignored, the failure to conduct assessments of need remains unspoken.  Those who live in congregated settings are not mentioned.  In the past 12 months Disability has been spoken as a drain on the public finances, in terms of those in receipt of social welfare payments and the services which we are provided with.

Earlier this year Minister Kathleen Lynch held a listening exercise with people with disabilities, the results of which have yet to be published.  From my table I heard people talk about transport, the environment, equipment, assistance to access communities and employment and education. I also heard people who are employed  talk about the cost of medication, transport, increased energy costs and how they receive no support towards these. There was very little talk about social welfare, this is not to say that income is unimportant, however services and supports, the respect and opportunity they afford and how they are provided are clearly very important as we could see by the efforts of those who protested at government buildings this month.

I was asked at the time if I thought the protests by people with disabilities was this governments ‘medical card’ moment – referring to the previous decision to cut medical card entitlements for some older people. I said no. I didn’t think this will damage the government fundamentally.  I do think however that for people with disabilities and their interaction with government that something has changed.  The general public have seen people with disabilities at home and abroad in a new light.  Elite athletes competing for their country and themselves and people with disabilities ‘putting it up’ to the government over cuts to services.

Those who were present at Paralympic events were invited to stand if they could at the medal ceremonies.  At home many others stood with people with disabilities while they said that they would not return to the institution be that a formal or informal (family care) one.

The government have this week been damaged again by politics over policy, politics over passion as Róisín Shortall resigned after months of difficulty and a lack of commitment to policy, transparency and accountability by her own party and their partner in government. Senior ministers trot out excuses about the country having lost it’s economic sovereignty – however for many living in this country values, dignity and respect remain important.

It appears that these dilemmas of values and policy and resisting reform and no more looking after number one have evaded senior members of the Labour Party. They are locked into a programme for government and repayments to gamblers and bullheaded senior ministers who can get on with no-one which leads to 44 people being held captive in acute hospital settings when they do not need that care for the past six months and hundreds of others for weeks and months on end.  The country continues to be in a shambles economically and morally.  We’ve had resignations before but Róisín Shortall’s is very different from the likes of Willie Penrose – she opposed a decision being taken to feather Reilly’s electoral bed and she criticised the lack of commitment to the Programme for Government including free GP care for the most ill, care in the community for the most vulnerable.  Equality, fairness, values and passion from someone who could stand.

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Parents against everything?

September 20th, 2012 · Irish Politics

The long awaited publication of the wording for the Children’s Rights Referendum has been widely welcomed.  Since the publication I have been listening to experts and the Minister for Children discuss the merits of the proposal.

I do hope in the coming weeks that some discussion will be on the care system, the lack of supports for many parents in that system and the proceedings and how they occur.  The conditions in our family courts are often worse that a cattle market, we don’t hear about that due to the in camera rule.  Hopefully there is discussion of this matter also.

The McKenna judgement (1995) maintains that both sides should have equal airtime in a referendum debate. So another part of yesterday has been waiting to see who arrives to say they don’t agree with the wording.  We might be waiting a while longer. (And we might need a referendum on the Judgement and it’s impact).

However Kathy Sinnott the former MEP has in the past few months claimed that the referendum would mean enforced vaccinations (no it won’t) and has written a six part series in Alive about why we should not protect children in our constitution.

And then there is the Alliance of Parents against the State.

No I had not heard of them until yesterday either.

I think we might have a lot of Chicken Lickens, Henny Penny’s and Goosey Loosey’s in the weeks to come.  Of course we must have robust debate on this matter and ensure people are fully informed. I don’t envy the media or the viewer/listeners or the chair of the referendum commission between now and November 10th. Lots of people (on both sides) are looking at this for a chance to make their name.  So expect to hear voices you don’t know (who maybe don’t know much about the law or children) talking about it in the weeks to come.

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Demonstration against HSE cuts to Personal Assistant services

September 3rd, 2012 · Disability, Equality

In response to the HSE cuts to Personal Assistance services and Home Care packages a group of people with disabilities under the banner of the Leaders Alliance have organised a demonstration tomorrow outside Government Buildings.  The statement below explains their concerns and the wider issues which need to be addressed in addition to rescinding the cuts.

 

Press Statement

 

People with disabilities to protest on Cuts to Independent Living Supports, ahead of Cabinet meeting

Disabled people are travelling to protest outside Government Buildings on Tuesday 4th September -coinciding with a meeting of the Cabinet -  to launch a campaign to bring an end to the appalling cuts to Personal Assistance and Home Help Services.

On Tuesday 4th September from 12:00 pm – People with disabilities, their PAs, Home Helps and families will protest against the disgraceful, retrograde and inhumane cuts to these frontline services for as long as it takes to abandon this decision.

 

Disabled people involved in this campaign have said:

‘’These cuts are illogical, and counter to Government policy. These Cuts make no economic sense and will increase costs to the exchequer and will deny people basic fundamental rights to live with dignity and choice.’’

This protest is organised by people with disabilities who require Personal Assistance and other supports to live independently in their communities as is consistent with Government policy. Supports that ensure people can receive education, obtain employment, travel to/from work, contribute and participate in many other ways within their communities. Supports which ensure that many isolated people in rural and urban settings have vital links to their communities and live lives with choice and dignity, and are not forced to access expensive hospital beds or nursing homes.

Key issues to be addressed by Government

The Government decision will mean PA and Home Help Services will be reduced or withdrawn from people throughout the country with immediate effect and will:

-                 Prevent disabled and older people from living independently in their own homes;

-                 Reduce the jobs of front-line PAs and Home Help workers.

Government Must Abandon these Cuts and

1.              Immediately assess the needs of all disabled and older people on waiting lists for personal assistance and other community based services who are currently held captive in costly acute hospital beds and nursing homes.

2.              Commit to the non-dilution of emancipative Personal Assistance Services with restrictive Home Help Services.

3.              Apply Government policy of supporting older and disabled people to live in their homes and participate in the community in order to remove pressure on costly institutions and acute hospital beds, but NOT to institutionalise them in their own homes through inadequate provision of Home Help and PA services.

4.              The Government must provide PA and Home Help employees equal status with directly employed HSE staff protected by the Croke Park Agreement.

5.              The Government must commit to ratifying the UN Convention on the Rights of Persons with Disabilities by January 2013.

6.              The Government must provide Independent Living the status it deserves and agree to transfer the social supports (i.e. PA and Home Help Services) currently provided by the Department of Health to the Department of Social Protection by January 2014.

7.              PA and Home Help Services must be available on the basis of need.

The protest against the PA cuts will begin this Tuesday morning and continue with an escalated campaign for as long as it takes for us as citizens to be given back our independence. We recognise the economic realities we face as a country. Government does have choices to reform that do not involve targeting groups already experiencing barriers to participate in Irish Society.

We are a non-aligned group of people with disabilities who use Personal Assistance services who have formed a Leaders Alliance and members are available for interview.

Join us on Tuesday 4th outside Government Buildings, Merrion Street from 12.00 PM.

 

Nothing about Us Without Us!

(if media  need contact information for spokespeople you can contact me on tips @ mamanpoulet.com and I can provide a list of numbers.)

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